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MUMS:
List of Disorders
S
Number in parentheses indicates number of matches.
*
indicates there is a support group which covers that diagnosis.
Sacral Agenesis (12) *
Saethre-Chotzen Syndrome (2)
Sagittal Synostosis (7)*
Samper Syndrome (Asthma & Asprin sensitivity & Nasal polyps) (1)
Sandhoff Disease (1)
Sandifer's Syndrome (8)
Sanfilippo Syndrome, Mucopolysaccharidosis (24) *
Sarcoglycanopathy (Muscular Dystrophy) (1)
Sarcoidosis (1)
Sarcoma, Ewing's (6) *
Scheie Syndrome (4)*
Scheuermanns Disease (1)
Schilder's Disease (1)
Schimke Immuno Osseosis Dysplasia (1)
Schinzel-Giedeon Syndrome (3)*
Schizencephaly (39) *
Schizophrenia (23) *
Schonlein-Henoch Purpura (10)*
Schwachman Syndrome (13) ***
Schwachman-Diamond Syndrome (13) ***
www.shwachmandiamondamerica.org
&
www.shwachman-diamond.org
Schwannomesatois & NF2 & Epidermal Nevus (1)
Schwartz-Jampel Syndrome (1) deceased
Scimitar Sacrum (1)
Scimitar Syndrome (8)
www.scimitarsyndrome.freeservers.com
Sclerocornea (2)
Scleroderma (8)***
Scleroderma, Linear Form (1)*
Scoliosis (219) *
Scoliosis after heart surgery (1)
Scoliosis, Infantile (5)
www.infantilescoliosis.com/
Scoliosis, Kyphotis (18)
Scrotum, Bifid (3)
Seckel Syndrome (12)
Secretory IGA Immunologic Deficiency (1)
Segawas Dystonia (Dopa Responsive Dystonia) (2)
Seitelberger Disease (Neuroaxonal Dystrophy, Infantile) (5)*
Seizure Disorder (1695) *
Seizures, \Awakening\ (1)
Seizures, Complex Partial (72)*
Seizures, Conscious (walks & talks during) (3)
Seizures, Drop Attacts (20)*
Seizures, Focal (55)*
Seizures, Intractable (8)*
Seizures, Rage (1)
Seizures-Left Posterior Quadrant Cortical Discharge (1)
Selective Immunogammuglobin M Deficiency (1)
Self Abusive (85)
Semi-Comatose (6)
Sensory Defensiveness Disorder (10)
Sensory Integration Disorder (125)
Seperation Anxiety (5)
Septo-Optic Dysplasia (29) *
Septo-Optic Dysplasia & Panhypopituitarianism & Hypothyroidism (4)
Severe Combined Immune Deficiency Disease (SCIDS) (1) *
Servelle-Martorell & Klippel-Tranaunay (1)
Severe Combined Immune Deficiency Disease (SCIDS) (6)*
Sexual Abuse (22) *
Shaken Baby Syndrome (51) *
Shapiro Syndrome (hypothermia,profuse sweating, brachycardia, apnea) (1)
Shones Syndrome (1)
Short Bowel Syndrome (39)
Short-Chain Acyl-CoA Dehydrogenase Deficiency (SCAD) (3) *
www.fodsupport.org
Short-Chain Hydroxyacyl Deficiency (SCHAD) (1) *
Short Gut Syndrome (39)
Short Rib-Polydactyly, Saldino-Noonan Type I (3)
Short Rib-Polydactyly, Saldino-Noonan Type III (2)
Short Rib-Polydactyly, Verma-Naumoff Type III (2)
Short Stature (91)*
Shortened Legs (1)
Shprintzen Syndrome (Velo-Cardio-Facial Syndrome) (43) **
Shpintzen-Goldberg Syndrome (Craniosynostosis-Arachnodactyly-Hernia) (2)
Shy-Drager Syndrome (1)*
Sialic Acid Storage Disease (3)
Sickle Cell Anemia (8)
Sickle Cell Disease (12) **
Sickle Cell "C" Trait & Hemiparesis Cerebral Palsy (1)
Silicone Poisoning (1)
Simpson Dysmorphia Syndrome (2)
Simpson-Golabi-Behmel Syndrome (SGB) (10)*
Simpson-Golabi-Behmel Syndrome (SGB) & Wolff-Parkinson-White (1)
Sinus Histiocytosis (1)
Situs Inversus (14)
Sjogren Syndrome (7) **
Skin Tags (4)
Slit Ventrical Syndrome (5)
Small Bowel and Liver Transplant (1)
Smith-Lemli-Opitz Syndrome (22) *
Smith-Magenis Syndrome (Chromosome 17-) (33) ***
Sneddon Syndrome (Livedo Reticularis) (1)
Sotos Syndrome (30) *
International translated website for Soto Syndrome
Spasmus Nutans (1)
Spastic Bladder/Bowel (1)
Spastic Diplegia, Cerebral Palsy (91)*
Speech Disorder (723) *
Spherocytosis (9)
Spina Bifida (239) *
Spina Bifida & Agenesis of Corpus Callosum (4)
Spina Bifida & Club Foot (27)
Spina Bifida & Dandy-Walker & Agenesis of Corpus Callosum (1)
Spina Bifida & Down Syndrome (1)
Spina Bifida & Occulta (8)
Spina Bifida w/Arnold-Chiari Syndrome (25)*
Spina Bifida, Fibolipomeningocele (1)*
Spina Bifida, Lipomyelomeningocele (4)*
Spinal Cerebellar Atrophy (2)
Spinal Cord Atrophy (1)
Spinal Cord Infarct (2)
Spinal Cord Injury (10)
Spinal Cord Injury, during birth (2)
Spinal Muscular Atrophy (78) **
Spinal Muscular Atrophy Type I, Infantile (Werdnig-Hoffmann)(24) **
Spinal Muscular Atrophy Type II, Infantile (Kugelberg-Welander)(15) **
Spinal Muscular Atrophy Type III, Juvenile (16) *
Spinal Stenosis (3)
Spinal Tumor (7)
Spinal, Arteriovenous Malformation (1)
Spinocerebellar Ataxia 8 (SCA8) (1)
Spinocerebellar Ataxia Type I (1)
Spinocerebellar Ataxia Type 7 (1)
Spinocerebellar Degeneration (6)
Splenectomy (6)
Split Fistula (2)
Split-Hand Deformity (5)
Spondyloarthropathy, Juvenile (1)
Spondylocostal Dysostosis (2)
Spondylolisthesis (2)
Spondyloepiphyseal Dysplasia, Congenital (11)*
Spondyloepiphyseal Dysplasia, Tarda (1)*
Spondylomtaphyseal Dysplasia Type Borochowitz (Maroteaux) (1)
Sprengel Deformity (6)*
St. Vitus Dance (Sydenham Chorea) (5)
Stargardt Disease (Retina, Fundus Flavimaculatus) (4) *
Stationary Night Blindness, Congenital (1)
Steinert Myotonic Dystrophy, Congenital (1)*
Stereotypies Movement Disorder (3)
Sternoclamastoid Release (1)
Stevens-Johnson Syndrome (Eryrhema Multiforme) (3)
Stickler Syndrome (25) *
Strabismus (168)
Streeter Dysplasia (3)
Strep Pneumococcal Memingitis (3)
Streptococcus, Group B (1)
Striatle Necrosis, Infantile (1)
Strider Paresis of the Vocal Cords (4)
Stroke (165)
Stroke after steroid therapy (1)
Stroke after surgery (11)
Stroke at birth (18)
Stroke from Meningitis (3)
Stroke from a virus (1)
Stroke, Intrauterine (55)
Stroke, Neonatal (7)
Sturge-Weber Syndrome (12) **
Subaortic Membrane (heart defect) (2)*
Subaortic Stenosis (heart defect) (10)*
Subarachnoid Hemorrhage (2)
Subcortical Cystic Encephalomalacia (3)
Subebendymal Giant Cell Astrocytoma Brain Tumor (1)
Subglottic Stenosis (19)
Sublexation of Shoulder Joints (1)
Succinate Cytochrome-C Reductase (3) *
Succinate Cytochrome-C Reductase & COX Deficiency (2)*
Succinic Semialdehyde Dehydrogenase Deficiency (2)*
Succinyl-COA 3-Ketoacid Coenzyme A Tranferase (1)
Sucrose-Isomaltose Enzyme Deficiency (3)
Sucrose-Isomaltose Malabsorption, Congenital (4)
Sudden Infant Death Syndrome (SIDS) (3) *
Sulfite Oxidase Deficiency (1)
Supra Valvular Aortic Stenosis (1)
Supraventricular Junctional Reciprocating Tachycardia (7)*
Supraventricular Tachycardia (17)*
Supraventricular Tachycardia Ebstein's Anomaly (2)**
Susac Syndrome (Encephalopathy, Branch Retinal Artery Occlusions & Hearing Loss)(1)
http://www.neurohaven.com/susac1.htm
Susac-Sicret Syndrome (1)
Sweet Syndrome (1)
Sydenham Chorea (St. Vitus Dance) (5)
Symbrachydactyly, bilateral (absent 3 middle fingers) (1)*
Symbrachydactyly (no digits on right hand) (5)
Syme's Amputation (1)
Syndactyly (fusion of digits) (40) *
Syndactyly of fingers & toes (fused bones) (15)
Syndactyly of fingers (22)
Syndactyly of toes (9)
Syphillis, Congenital (2)
Syringomyelia (13) *
Systemic Lupus Erythematoges, Class V Lupus (1)
MUMS: National Parent to Parent Network
Julie J. Gordon
150 Custer Court
Green Bay, Wisconsin 54301-1243
1-877-336-5333 (Parents only please)
920-336-5333
1-920-339-0995 (fax)
E-mail:
mums@netnet.net
Web: http://www.netnet.net/mums/
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Last updated September 17, 2007
mums@netnet.net