MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition.
MUMS' main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
Through a database of over 21,200 families from 56 countries covering over 3500 disorders, very rare
syndromes or conditions can be matched.
Parents can then exchange valuable medical information, as well as, the names of doctors, clinics and medical resources or research programs.
Families provide each other with emotional support and they don't have to feel so alone when they have each other to reach out to in time of need.
MUMS networks with other organizations which do matching, thus expanding the possibilities of finding a match.
MUMS also connects parents with support groups dealing with their child's specific disability or assists them in forming a group.
The newsletters allow families to share and speak out about issues affecting their lives. The newsletter subscription fee parents is $15 annually, but is waived for those who cannot afford this fee. The annual fee for newsletters for professionals is $25.
MUMS: National Parent to Parent Network
Julie J. Gordon
150 Custer Court
Green Bay, Wisconsin 54301-1243
1-877-336-5333 (Parents only please) 920-336-5333
1-920-339-0995 (fax)
E-mail: mums@netnet.net
Web: http://www.netnet.net/mums/